Multiple Sclerosis and veins: What you need to know
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Useful Links and Resources
I am including here some helpful links; do you want to contact me, to buy my book, a kindle, or other books about PhRMA? Below are links that may interest the person following the CCSVI story.
Please enjoy these links!
Want to talk to me or ask a question? You can! I have a facebook page for the book named CCSVIbook (link below).
Ask a Question or Comment on Facebook
On March 12, 2012 WJFF host Dick Reisling interviewed me on NPR. Hear it here:
Play WJFF interview
On January 28, 2011 I gave a presentation on CCSVI for CCSVI Seattle at REI. This event was full and many could not attend, but here it is along with great presentations by Eric Feigenbutz about Dopplers, Dr Lavore about Venoplasty, and Dr McGuckin about treating CCSVI.
Video of Presentation: MS as a vascular disease
CCSVI Alliance is a non profit charity started by MS patients interested in advancing CCSVI treatment and research. It is a legal 501(3)(c) charity currently staffed by volunteers. The funds they collect are used to promote awareness and fund research of CCSVI. 10% of my proceeds go to CCSVI Alliance. I volunteer on the patient board for CCSVI alliance as well. Joan Beal's album to raise funds is featured at the bottom of this page. She is on the director's board for the Alliance.
CCSVI Alliance
There is an active facebook page for Chronic Cerebrospinal Venous Insufficiency administered by Joan Beal ( I am co administrator) which offers interesting essays and topics of interest for people following the CCSVI story:
CCSVI in MS Facebook page
On March 12, 2012 WJFF host Dick Reisling interviewed me on NPR. Hear it here:
Play WJFF interview
On January 28, 2011 I gave a presentation on CCSVI for CCSVI Seattle at REI. This event was full and many could not attend, but here it is along with great presentations by Eric Feigenbutz about Dopplers, Dr Lavore about Venoplasty, and Dr McGuckin about treating CCSVI.
Video of Presentation: MS as a vascular disease
CCSVI Alliance is a non profit charity started by MS patients interested in advancing CCSVI treatment and research. It is a legal 501(3)(c) charity currently staffed by volunteers. The funds they collect are used to promote awareness and fund research of CCSVI. 10% of my proceeds go to CCSVI Alliance. I volunteer on the patient board for CCSVI alliance as well. Joan Beal's album to raise funds is featured at the bottom of this page. She is on the director's board for the Alliance.
CCSVI Alliance
There is an active facebook page for Chronic Cerebrospinal Venous Insufficiency administered by Joan Beal ( I am co administrator) which offers interesting essays and topics of interest for people following the CCSVI story:
CCSVI in MS Facebook page
(Pssst! Would you prefer a signed book instead? Order at the bottom of the first page of the website here....)
Kindle is available from Amazon. The book is available in digital form for about $10 and is readable on a Kindle (as well as some other reader devices). You can also search the book with a Kindle--handy!
There's a facebook page for this book also. Ask a question or start a discussion about the book!
There's a facebook page for this book also. Ask a question or start a discussion about the book!
Here's one of my favorite books--Overdosed America talks about how science is manipulated to make it appear drugs are more effective than they are.
Another favorite book, The Truth about Drug Companies.
And last but most important: Joan Beal's lovely album featuring 4 inspiring songs selected specifically for us with CCSVI. ALL of the proceeds go are to be divided among CCSVI Alliance, Brave Dreams study (Zamboni) and CCSVI Society.
